Liz came through the Passion for Birth program several years...she stood out at that point as being talented and passionate. I was happy when our paths crossed again at a DONA doula trainer program and then last fall when I was having a huge hotel headache at the Lamaze/ICEA conference. She was the calm support in the lobby!
It must have been right after that they became aware that her son had Myotonic Dystrophy, a form of Muscular Dystrophy. As they did further testing, her husband and other children also learned that they too had different levels of severity of the neuromuscular disorder. She was pregnant at the time and after her birth, learned the her daughter too has Myotonic Dystrophy. Her family's journey has been challenging but they are a team!
They were picked to be part of the MDA Labor Day Telethon and this is the clip that aired featuring their family:
If you are in the position to make a donation to the MDA, please do!
It must have been right after that they became aware that her son had Myotonic Dystrophy, a form of Muscular Dystrophy. As they did further testing, her husband and other children also learned that they too had different levels of severity of the neuromuscular disorder. She was pregnant at the time and after her birth, learned the her daughter too has Myotonic Dystrophy. Her family's journey has been challenging but they are a team!
They were picked to be part of the MDA Labor Day Telethon and this is the clip that aired featuring their family:
If you are in the position to make a donation to the MDA, please do!
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